Wednesday, March 21, 2012

For those of you that do not know me very well, Grim Lizzie Papa is my rapper name. I consider myself a bit of a gangster, I even have a tattoo to prove it. I wanted a cool name for my blog so what better name to use than my name?! 

Anyways, this past year I have been sick a lot and it's been a long process to finally come to a diagnosis. Since my diagnosis, everything has been happening at a speed that I can't comprehend, so I started this blog to get a sense of control back in my life. This way, I can get my story out my way and details are not lost or added like in a game of Telephone (I really don't want to end up a leper with one eye and a funky rash that wont go away). So this is my life! A little over a month ago I had an MRI and they found a large mass in my liver that takes up the whole right lobe. When I visited the Children's Hospital, I was diagnosed with Fibrolamellar Hepatocellular Carcinoma, which is a rare liver cancer. Only about 25 people in the US are diagnosed with it each year. Because my cancer has spread to a spot by my heart and another in my esophagus, it is classified as stage four (there are four stages in cancer, stage one being the best). But don't worry! My doctors are the best and are on top of my treatment. They have taken every precaution to make sure that my cancer did not spread anywhere else. I even had something radioactive injected so that they could see my bones better on certain tests. Unfortunately, that didn't give me super powers. I'm still waiting for my spidey senses to kick in. I recently finished my first round of chemo and in April I go back for round two. If my cancer is reacting the way it should, then in the summer I'll have one big surgery to remove all my tumors and I will return to a semi-normal life (hopefully filled with fighting crime with my super powers).

Props to Nisha George for convincing me to get a rapper name and Katelynn McWilliams for inspiring me to make a blog!

Keep following for more posts about my everyday life and if you have any questions don't be afraid to ask. I really don't have anything better to do!

18 comments:

  1. You are absolutely amazing, and hilarious!! We are all praying for you every day, I am so excited about you starting this blog, it is really confusing trying to figure out what is going on and getting 15 different answers!!

    Love,
    Brittney Scogin

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  2. Sooooo glad you have your own website. Plan on a trip to Hunt. The Canoe is ready and so am I. Love Paw Paw

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  3. YES! I'm so excited you started a blog. Love you so much!

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  4. I will be following your blog dear girl.. My friend Michele Hollingsworth Smith posted this and I am so interested and amazed with you already.. I pray that you keep this blog up.. Love it. I know you don't know me.. but wanna let you know that I love ya..... Be blessed little sister.. It's going to be an amazing journey that you are going through, and I know you will tell it well.. Love your post.
    Raniece Adams Isenberg, Lufkin, TX

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  5. Your Great Grandfather was a writer as well!!! You are AWESOME!! Love every word :-)

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  6. I grew up with your dad and I am praying for you and cheering you on. Much love from those 'crazy Lewis Girls!'

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  7. You don't know me, but I'm praying for you. And so are my kids. I'm going to follow your blog, it's got a great vibe,and I can tell already that you are a pretty terrific writer and have a great outlook as you dive into this journey.

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  8. Lizzie,

    What a great way to document your journey! Look forward to reading your post! Lots of love coming from Atlanta
    ~Katie~

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  9. Liz - Always here whenever you need an ear. You be a rapping fool. For schnizzle (can I say that?)

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  10. It is not easy to face a challenge like this so early in life, but it will make you stronger than most and every other point of adversity will be chump change. Just rap through it and throw down when called-out! Peace!
    -Kevin

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  11. Grim Lizzie Papa ,Can't wait for your next CD. You come from a very strong family that only nows the meaning of fight and fight harder when we have to. You are a truly an admiration to me and I look up to you in so many ways . I thank you for being such a leader and wonderful example for my girls in every aspect. I love you very much and plan to be following Pug life Blog (dog).

    Love. Uncho Puncho

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  12. Lizzy, sigue adelante con toda esa fuerza, eres una inspiracion para mi y mi familia,nuestras oraciones estan contigo y con tu familia. Esperamos verte pronto para compartir unas deliciosas fajitas en Cafe del Rio para que sigas haciendonos reir a chantal y a mi
    Ask Chantal for the translation ha ha!!! Blessing, congratulations for your blog!!
    Ms. Aguilar

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  13. Come hang out at our house any time! You are always welcome!

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  14. This kid has something! She is a rockstar. She has the focus of a laserbeam. But that isnt her real gift. It is her ability to give beyond what she has. I have never met anyone like her. He broke the mold baby when God reached his mighty hand down and created an angel on earth.

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  15. Lizzie,

    I admire how brave and optimistic you are!! I hate it that you have to go through this, but have no doubt you will kick cancer's ass!!!

    Sending lots of love from Colorado,
    Kristen :)

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  16. Phillip has always said "Bald is beautiful!" But you give a whole new meaning to that phrase! Keep up the blog so that we can know first hand how your super powers are kickin' butt! FYI, you had super powers long before the treatments started!

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  17. Hang in there lizzie every body is only wishing the best

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  18. Hey,

    Keep hanging in there! I have Fibrolamellar Hepatocellular Carcinoma too (diagnosed June 2012). Chemo is hard, but just keep looking towards the end of the last round, it will come faster than you think.

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